Yesterday we went to Children's Hospital to have some tests done on Noah's heart. Originally in our 21 week ultrasound they suspected that he had "Tetralogy of Fallot", this was confirmed yesterday. The good news is that though he has this congenital heart defect (common in Trisomy 13) it is not currently affecting his body. The case with this heart problem is that it tends to get worse as you get older but in a Trisomy 13 baby it is unlikely to be the cause of death. We were very happy to hear that Noah's heart (despite the diagnosis) is currently functioning well. We will pray that this will continue to be the case. At any rate the cardiologist does not predict that Noah will have any "blue spells" caused by this defect any time soon. He is prepared to see him again in a few months time should God bless us with a few more months. Noah continues to beat all the odds and we are just extremely happy that he is not in any pain and is not currently experiencing any symptoms or side effects associated with his diagnosis.
6 comments:
thanks for the update! continually praying for noah and the family! he is so precious! see you guys saturday maybe?
Hello,
Noah is a cutie... Glad all is going well.
If you need anything, please reach out. Please know you are not alone.
Blessings,
ThereseAnn mom to Natalia full t13 7yrs.
http://www.livingwithtrisomy13.org
We also have message boards if you'd like to talk to others raising a child with trisomy 13.
Thank you for sharing these stories--I can never wait to get home to read them. I told my bible study that Noah was doing well so far, since we've been praying for him. So happy for you again, and thanks for taking the time to update us all!
Hi Melissa, Jon, David & Noah
Miss you guys! I have copied the picture of Noah and David as my backdrop on my computer so I can see them all day long.
Love you, mom Hanson
Hey Melissa and Jonathon
Just to let you know, I'm checking in every day to see how you're all doing.
If prayers from across the pond are any comfort, just know that you're getting them in spades :o) My small group here are also praying for you.
I've let Lauren know that I have links through work with a fantastic family here who have a 6 year old girl with trisomy 13 - if you ever want to talk to Chrissie (the Mum) just let me know.
You guys take care, enjoy your 2 little fellas and know that love and support are coming your way from over here :o)
xxx
Melissa,
Noah's pictures are so cute! I'm glad he's doing well. He is such a sweetie.
Love Aunty Linda
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